SAVE THE LITTLE HEART OF JOSE MARIA
My name is Magda. I’m presently 16 weeks pregnant, due on 7.08.2025. We are going to have a boy named Jose Maria.
When I was 13 weeks pregnant, during a routine examination, doctors noticed the baby’s heart condition. After additional tests, it appeared that Jose suffers from hypoplastic left heart syndrome (HLHS). Because of that, I’ll be forced to give birth in Madrid or Barcelona, so doctors would be able to operate on our son’s heart just after birth. 
We are supposed to stay in Madrid or Barcelona for 2-3 months. For now, the baby will have at least 3 heart operations. We will need money for our son’s rehabilitation and all other expenses (as to this day we can only predict there will be many of them) connected with Jose’s treatment and long stays in Madrid or Barcelona (where there are hospitals and doctors specialized in heart conditions).
UPDATE:
Our son José María was born on August 9th, 2025, at the Gregorio Marañón Hospital in Madrid. Immediately after birth, he was admitted to the neonatal ICU. Four days after being born, on August 13th, José underwent a hybrid surgery aimed at stabilizing his heart and preparing him for the next interventions: the cardiac surgeons placed a small spring in the ductus to prevent it from closing so that blood could flow between the pulmonary vein and the aorta (this is a fetal vessel that normally disappears naturally in all newborns after birth), and also stents to narrow the pulmonary veins and control the amount of blood flowing to the lungs and the rest of the body. The surgery was successful, and José is currently stable.
After birth, the cardiologists confirmed that, in addition to the absence of the left ventricle of the heart, José’s aortic outlet is very narrow (instead of 7 mm, in José it is only 2 mm), and the valve between the right atrium and the right ventricle is leaking, causing blood to flow back. The doctors decided that the best solution in this situation is a heart transplant, and José has already been placed on the transplant waiting list.
If no donor is found, the next heart surgery will take place between the third and sixth month of life.
We have been in Madrid since the 36th week of pregnancy (we moved here from San Pedro del Pintar, in Murcia, where we normally live), and we will remain in Madrid for the coming weeks and months. José is and will remain in the ICU.
We kindly ask for your continued support—we are currently in constant motion between the hospital and the house where we are staying while waiting for a transplant or the next surgery.
You can help Jose Maria by makinf payment on the account:
Fundacja Pomocy Dzieciom i Osobom Chorym Kawalek Nieba
PL31109028350000000121731374
swift code: WBKPPLPP
Santander Bank
Title: 4328 Help for Jose Maria Pardo-Knysz
Or by electronic transfer:
